Friday, January 9, 2015

The future is bullet proof

My biopsy came back positive.  Your invincibility takes a bit of a hit when the biopsy comes back positive.  Don't freak out anyone - it's not cancer, it's eosinophilic esophagitis.  Here's what this means as far as I know right now.  Most of this is gleaned from the Mayo Clinic's website and wikipedia, so that's the first disclaimer.  Eosinophils are white blood cells that are typically present in the stomach.  However, in situations like mine, due to various causes such as allergies or acid reflux, they may build up in the esophagus and cause the esophagus to constrict, in some cases forming rings, hence why eosinophilic esophagitis (EE) may also be known as feline esophagus or ringed esophagus.  EE is most common in younger males and so I guess I got half of that correct.  Until the last decade or so, EE was commonly misdiagnosed along with GERD (acid reflux disease), which I'm guessing I have as well and that I know was passed down genetically.

Here all of my next steps laid out.  First, I had to find a personal physician and I've done that but I can't get in for an actual appointment until near the end of the month.  Once that's happened, I will most likely have her refer me to a GI specialist who can determine what I'm actually allergic to, if anything.  My guess would be that its based on the acid reflux and not allergies, but that's just a shot in the dark.  Mom's most likely guess right now is green beans, which would make pre-college Lisa quite jealous, but I like beans and don't really want to give them up.  Besides all of that, I've had to find a pharmacy nearby that makes compound medications, which once again, I've already done, so that they can make me a Budesonide slurry.  Budesonide is a glucorticoid steroid most commonly used in the treatment of asthma and COPD.  I'll be taking it in slurry form so that it'll coat the esophagus and work there instead of just making its way immediately to the stomach.  I believe the plan is for me to take these intermittently over a period of ten weeks, but I'm not sure on that at all and I'll have to ask my nurse when I get hold of her again.

Finally, when you know you have to take a slurry, just use the examples you'd know, like a slushie or slurpee or whatever a convenience store wants to call it, as opposed to the Google definition, which is "a semiliquid mixture, typically of fine particles of manure, cement, or coal suspended in water." 
Gagalicious.

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